Post to Parent Group: August 31 at 4:41pm
Day
1 of Neurofeedback did not go so well.
In an effort to remain truthful
to my son. I tried to explain the real purpose of my friend making a
home visit with NFB equipment. He right away said he will not do this
and went down the basement to watch tv. I let my son chill out until my
husband came home an hour before the appointment.
I had my husband take
my son out to play ball or frisbee so I could run the air conditioner
and vacuum the house. When it was time to come back, my son ran off to
avoid the session. I had hubs come home so he and my middle son could
learn how to use the equipment.
I went driving around, frantically
looking for my 12 year old. As I was cruising around, I saw the police
chief who lives in our neighborhood outside in his yard and stopped to
see if he saw my son. I explained the
situation. At this point I am not 100% sure my son will not harm himself
and decided to enlist the police to help find him.
I now have an
"elevator speech" * for Misophonia and the police now have his
information and photo in their system. We did find my son walking around
and got him home after the OT had left but at least we have a system at
home and 2 people who may know how to administer. My Miso-son is holed
up in the bathroom spewing hate-messages but at least he is safe for
now. (until he triggers "the Hulk syndrome in Mom" and all bets will be
off.)
* "My son has a neurological disorder called Misophonia.
It is a sound-processing disorder where certain noises trigger a
reaction similar to PTSD (post traumatic stress syndrome. #MisoElevatorSpeech #therapyavoidance #gettingvalueforyourtaxdollars
Like · · Unfollow Post · August 31 at 4:41pm
Post to Parent Group: August 31 at 4:41pm
Day
1 of Neurofeedback did not go so well.
In an effort to remain truthful
to my son. I tried to explain the real purpose of my friend making a
home visit with NFB equipment. He right away said he will not do this
and went down the basement to watch tv. I let my son chill out until my
husband came home an hour before the appointment.
I had my husband take
my son out to play ball or frisbee so I could run the air conditioner
and vacuum the house. When it was time to come back, my son ran off to
avoid the session. I had hubs come home so he and my middle son could
learn how to use the equipment.
I went driving around, frantically
looking for my 12 year old. As I was cruising around, I saw the police
chief who lives in our neighborhood outside in his yard and stopped to
see if he saw my son. I explained the
situation. At this point I am not 100% sure my son will not harm himself
and decided to enlist the police to help find him.
I now have an
"elevator speech" * for Misophonia and the police now have his
information and photo in their system. We did find my son walking around
and got him home after the OT had left but at least we have a system at
home and 2 people who may know how to administer. My Miso-son is holed
up in the bathroom spewing hate-messages but at least he is safe for
now. (until he triggers "the Hulk syndrome in Mom" and all bets will be
off.)
* "My son has a neurological disorder called Misophonia. It is a sound-processing disorder where certain noises trigger a reaction similar to PTSD (post traumatic stress syndrome. #MisoElevatorSpeech #therapyavoidance #gettingvalueforyourtaxdollars
* "My son has a neurological disorder called Misophonia. It is a sound-processing disorder where certain noises trigger a reaction similar to PTSD (post traumatic stress syndrome. #MisoElevatorSpeech #therapyavoidance #gettingvalueforyourtaxdollars
I am hurting for your son and for all of you as you try to figure out how to cope. I'm sure you're so grateful for the support group - a constant reminder that you're not alone.
ReplyDeleteThanks, Terri! Having support groups to turn to has been my saving grace.
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