From Wikipedia, the free encyclopedia:
Misophonia, literally “hatred of sound”, is believed to be a neurological disorder characterized by negative experiences (anger, flight, hatred, disgust) triggered by specific sounds.
This Blog chronicles our adventures with my youngest son who suffers from this disorder.
Wednesday, September 11, 2013
Tired of Explaining
Post to Parent Support Group, 9/11/13 - 10:57 a.m.
got off the phone with a friend that was checking in. How many of you
get frustrated with well-meaning advice? While I think my son may be
able to have more control at home, I do not think we are being "played".
And no, I don't think we are parents who "do too much" and let the
"quality of our life for the rest of the family suffer". #TiredOfExplaining Grrrr!
give context to my rant, the conversation was started by a simple
comment how I hoped my husband would remember to water my garden later
this morning. I had mentioned that the sound from the water pipes carry
into my my son's current sleeping area and we are trying not to agitate
him in the morning.
I left for work early this morning. I had a busy day ahead. Before I left, I slipped a note under Colin's bathroom/bedroom door. " I <3 U. Have a nice day! - Mom". I emailed a reminder later that morning for my husband to water my garden. We are trying to minimize the water use in the morning as the sound from the pipes carry into Colin's current sleeping area.
This was the first day I did not call at 9:00 a.m. to see if we had a successful "launch" to school. I figured no news is good news. My husband had a morning phone interview and I did not want to distract him during his preparation.
Around 10:00 a.m. my friend David called for his daily week-day check-in/bitch session. He is a fellow small business owner in a similar line of work. It's been fairly hot the past few days and I happened to mention that I hoped my husband would remember to water my plants. I explained about the change I had to make to my morning routine.
While David, knows about my son's strange disorder, I try not to burden my friend with a lot of the details. The mention of avoiding a morning trigger launched a conversation I did not want to have. Sentences prefaced with " I don't mean to sound critical...." or " Don't take this the wrong way but..." peppered the discussion with a series of questions and well-meant advice.
I found it ironic that my childless, gay friend was giving me parenting advice. This coming from a man whose main employee is a drug addict who works to earn cash to pay for his next fix. Don't think I didn't draw a parallel. Yeah, I went there. In the nicest possible way. Awesome tactic to end that conversation. Who's the enabler now??!!!
I don't get angry but I find it very frustrating. I get tired of
constantly explaining and defending the way we are dealing with our
Misophonic Child. Unless you are dealing with this daily, I don't expect anyone to understand. Misophonia is NOT a choice. Reactions to trigger sounds are not some clever ploy for a child to get their way. This is a neurological not psychological disorder that brings out the primal animalistic fight or flight behavior when triggered. NOT A CHOICE!
I think I need to start recording some responses to the standard questions and advice I keep getting from friends and family. This way I could just push a button to give my pre-recorded answers.
I can't help but wonder if this is some kind of karmic payback for my own well-intentioned advice to others over the years.